“I feel so alone and isolated.” I
hear these words a lot from Special Needs parents. It is hard when family
members do not understand. Friends don’t get it or push away. Spouses are not
in agreement with diagnosis, treatment, or everyday care. You don’t have “you
time” because your time is spent running your child to therapy and doctor
appointments. It is not an easy journey.
The best piece of advice I was
ever given was “find your people”. Find people that are in the same situation
as you and reach out. No one can do this journey alone without support. There
are people out there that get it. You can find them at the therapy office,
doctor office, classroom, online blogs and social media.
There are people who have been
there before that want to cry with you, hug you, and share their knowledge with
you. After moving, I happened to just bump into someone that “got it” at my
kids gymnastics class. Our kids were the only two kids not following the group.
I don’t remember how we started talking about therapy and our kids, but it was
so good to finally have a chance to share with someone with no judgment. She
not only pointed me in the right direction of a great therapy clinic, but taught
me about therapy funding and even helped me fill out paperwork. She was God
sent at that moment because she was exactly what I needed at that time.
If you are feeling alone and
isolated because the people around you just do not understand, know that I have
prayed for you. I hope you reach out and find “your people” soon. And when you
do find them, please be on the lookout for others who were in your shoes. They
will need you too.
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